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Imagine being told your daughter you thought was healthy but perhaps slow to progress, in fact

had a rare and devastating disability

called Rett Syndrome

Hello...

Thanks for visiting. 

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In 2018, I'm looking to spread awareness of Rett Syndrome, the great work Rett UK do to support families and the challenges I'll be taking part in to get you to part with your lovely money. 

Why

Find out why I'm raising awareness for Rett UK and what it means to me and my family

Why

Find out why I'm raising awareness for Rett UK and what it means to me and my family

Bloggy blog 

Ramblings, spelling mistakes and how it's all going

Events

What's booked in, what's coming up and any other suggestions

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